Acute Intermittent Porphyria Compensation Claims

Helping you claim compensation

We help people who have been misdiagnosed or endured a lengthy delay in diagnosis when suffering from Acute Intermittent Porphyria (AIP) as a result of clinical negligence.

Unfortunately, misdiagnosis of Acute Intermittent Porphyria is common and is likely either due to lack of clinical investigation or clinical inexperience. Acute Intermittent Porphyria can be diagnosed by biochemical testing: a urine porphobilinogen (PBG) test during an acute attack, or by genetic testing: looking at the genes known to cause the acute porphyrias.

Find out if you have a claim and get the compensation you rightly deserve. A misdiagnosis of Acute Intermittent Porphyria can be life changing so contact one of our clinical negligence specialists if you feel you may have fallen victim as a result of a lack of care and understanding.

What is acute intermittent porphyria?

Acute Intermittent Porphyria commonly known as (AIP) is a genetic metabolic disorder that affects the production of an oxygen-binding prosthetic group of hemogloWe help people who have been misdiagnosed or endured a lengthy delay in diagnosis when suffering from Acute Intermittent Porphyria (AIP) as a result of clinical negligence.

Unfortunately, misdiagnosis of Acute Intermittent Porphyria is common and is likely either due to lack of clinical investigation or clinical inexperience. Acute Intermittent Porphyria can be diagnosed by biochemical testing: a urine porphobilinogen (PBG) test during an acute attack, or by genetic testing: looking at the genes known to cause the acute porphyrias.

Find out if you have a claim and get the compensation you rightly deserve. A misdiagnosis of Acute Intermittent Porphyria can be life changing so contact one of our clinical negligence specialists if you feel you may have fallen victim as a result of a lack of care and understanding.bin known as heme. The function of the prosthetic group of hemoglobin is to deliver oxygen to tissues around the body. Acute Intermittent Porphyria is characterised by a deficiency of the enzyme porphobilinogen deaminase within heme. Only 10-15% of gene carriers have the clinical syndrome.

Misdiagnosis & delayed treatment

Acute Intermittent Porphyria, by its very nature, can be difficult to diagnose and is a rare and often elusive illness. However, this does not mean mistakes and misdiagnosis are not made. In fact, we have dealt with cases for our clients where Acute Intermittent Porphyria should have been diagnosed and treatment carried out much earlier.

So far there has been minimal teaching in the UK. A lack of familiarity with the disease has unsurprisingly led to continued delay in diagnosis and misdiagnosis resulting in delayed treatment.